San Filippo Syndrome, also known as Mucopolysaccharidosis Type III (MPS III), is a rare genetic disorder that affects the metabolism of complex sugars called glycosaminoglycans. It is classified as a lysosomal storage disorder, resulting in the accumulation of these sugars within the cells. San Filippo Syndrome is characterized by a progressive deterioration of neurological functions, leading to severe cognitive and physical impairments. Children affected by this syndrome typically experience developmental regression, behavioral problems, and loss of acquired skills. Sadly, there is currently no cure for San Filippo Syndrome, and treatment mainly focuses on managing symptoms and improving the quality of life for affected individuals and their families.

In the realm of medical challenges, where time is of the essence, a fierce battle wages against Sanfilippo Syndrome—a rare and devastating disease that affects young lives. Within this struggle, the Cure Sanfilippo Foundation emerges as a beacon of hope, tirelessly working to fund crucial research and provide support to families affected by the syndrome. With unwavering determination, they strive to unlock the keys to a brighter future, where innovative breakthroughs offer the promise of effective treatments and, ultimately, a cure for Sanfilippo Syndrome.

Amidst their ongoing efforts to combat Sanfilippo Syndrome, the Cure Sanfilippo Foundation invites you to tee off for a day of golf and philanthropy at the upcoming 2023 Porcaro Family Charities Golf Outing. Join fellow supporters and golf enthusiasts in this prestigious event, as you swing into action and contribute towards funding critical research and support programs for families affected by the syndrome. Your participation in this remarkable event will help pave the way towards a future where a cure for Sanfilippo Syndrome becomes a reality.

The 2023 Porcaro Family Charities golf outing at lovely Meadowbrook Country Club in Racine, WI, will benefit Olivia “Liv” Stoop and Cure Sanfilippo Foundation’s mission to cure Sanfilippo Syndrome.

This sixth annual event will again welcome 104 golfers for this 18-hole scramble and has sold out in past years.

Not a golfer? There are so many others way to contribute. You can help sponsor the event, or a hole. You can also contribute to their silent auction. If you have something you’d like to donate, there is a “contact” tab on the link below, to get in contact with Anthony.

“NO Dinner Only” guests

Silent Auction will be done ON-LINE this year, with items displayed and bidded on at this website. The Silent Auction will close on Monday, August 28th @ 8:00 PM
We will still have a couple of Cash Games on the course:

Experienced Golf Ball Stand
Cannon Shoot w/premium prize opportunity
Double Up 50/50

11:30 AM – Arrive at MCC
12:30 PM – Shotgun Start
5:00 PM – Cocktail Hour
6:00 PM – Italian Dinner Buffet/Award Reception

The desire of Olivia’s family was for all money raised for this charity event to go directly to Cure Sanfilippo Foundation, which is different from how the event has worked before. To accommodate their request and align with their mission, Porcaro Family Charities has agreed that 50% of the 2023 Porcaro Family Charities golf outing proceeds will benefit Cure Sanfilippo Foundation for Sanfilippo Type B research and the rest will directly benefit the Stoop family for medical needs that are likely to arise in Olivia’s lifetime.

Make a difference in the fight against Sanfilippo Syndrome. Register now for the Golf Outing event.