Prader-Willi syndrome (PWS) is a rare genetic disorder that affects various aspects of a person’s life. People with PWS often experience a range of challenges, including insatiable appetite leading to obesity, intellectual and developmental disabilities, low muscle tone, and behavioral issues. This condition arises due to a genetic abnormality that affects a specific region of chromosome 15. Individuals with PWS require specialized care, as their unique needs demand a multidisciplinary approach involving medical, nutritional, and behavioral interventions. Understanding PWS is crucial for providing appropriate support and improving the quality of life for those affected by this complex syndrome.
Supporting individuals and families affected by Prader-Willi syndrome, organizations like the Prader-Willi Syndrome Association play a pivotal role. Through their dedication to raising awareness, providing resources, and offering a supportive community, they contribute to enhancing the lives of those living with PWS and their loved ones.
Continuing their impactful efforts, the Prader-Willi Syndrome Association is excited to announce their upcoming fundraising event, the 14th Annual Hunter Lens Golf Tournament. This event not only promises a day of golfing fun but also presents an opportunity to directly contribute to the support, research, and advocacy efforts for individuals and families affected by Prader-Willi syndrome.
14TH ANNUAL HUNTER LENS GOLF TOURNAMENT
OCTOBER 7, 2023
THE BACK NINE CLUB
17 HERITAGE HILL DR, LAKEVILLE, MA 02347About Hunter
Hunter is 24 years old and has Prader-Willi syndrome. He leads a happy, active life despite his daily challenges. He has friends, a loving family and his weight is under control. Supporting PWSA | USA, a non-profit, will open more doors for Hunter and others who live with PWS, which ultimately means a better life. Hunter deserves a better life. Please join us on this special day in honor of Hunter to benefit PWSA | USA’s research efforts.The Event
Join us for a full afternoon of fun activities Saturday, October 7th- golf, a silent auction, prize drawings, and delicious dinner. Meet Hunter, learn more about PWS and how PWSA | USA is working to help PWS families across the U.S, and enjoy a day on a beautiful course with great friends!To donate a silent auction item or to become an event sponsor, contact John Lens at [email protected] to make arrangements.
Join us at the 14th Annual Hunter Lens Golf Tournament and make a meaningful difference in the lives of those impacted by Prader-Willi syndrome.