On April 4, 2026, Rare New England will host Advancing Rare Together at the Boston Museum of Science—a dynamic evening where rare diseases take center stage and the community’s collective voice becomes impossible to overlook. If you’d like to attend this one-of-a-kind gathering of patients, families, healthcare professionals, and advocates, you may register here.

Your participation fuels RNE’s mission: connecting individuals living with rare and complex disorders to critical resources, support networks, and educational opportunities. By showing up, you help elevate stories that often go unheard—and strengthen the path toward better care, awareness, and collaboration across New England.

So if you’re in Boston, or if the rare disease community holds a place in your heart, this is an evening worth stepping into.

Be part of an extraordinary evening where rare diseases take the spotlight, and your work brings the unseen to life!

Rare New England invites you to be part of something truly meaningful in 2026. On April 4, 2026, from 5:00–7:30 PM at the Boston Museum of Science, we are proud to present:

Advancing Rare Together – A Night at the Museum with Rare New England

This one-of-a-kind fundraising event will bring together patients, families, healthcare providers, researchers, advocates, and community leaders for an unforgettable evening of inspiration, innovation, and impact.