Get involved SHE’S one of the country’s Butterfly Children because her skin is so delicate.
It may shear off and blister under the gentlest touch, but Lauren Rogers is determined not to let her condition ruin her life. From birth, the plucky youngster from Denbigh has battled with rare disease Dystrophic Epidermolysis Bullosa (DEB). She has to be careful of her every movement because the slightest bump can cause severe blistering. But the 13-year-old Denbigh High School pupil put her troubles behind her when she was whisked off to Majorca with other Butterfly Children from across the UK. The Great Ormond Street Hospital patients were VIP guests at a star-studded charity premiere of the Pirates Adventure Show. The spectacular event filled with action, dance and acrobatics, raised over &pound71,000 towards the Theatres for Theatres Appeal, which is funding two state-of-the-art operating theatres within a new children’s centre for Neurosciences.
The youngsters and their families were flown to the island and treated to a week’s holiday, courtesy of First Choice Holidays and got to mingle with celebrities including Harry Potter’s Draco Malfoy, Tom Felton, members of the Eastenders, Holby City and Coronation Street.