Neurofibromatosis, a genetic disorder affecting the nervous system, is characterized by the growth of tumors on nerves throughout the body. This condition can manifest in different forms, the most common being Neurofibromatosis type 1 (NF1) and Neurofibromatosis type 2 (NF2). NF1 primarily leads to skin abnormalities and diverse symptoms, while NF2 is primarily associated with tumors on the auditory nerves, potentially causing hearing loss. These tumors, though usually benign, can vary in size and location, causing a wide range of complications. Despite ongoing research, there is currently no cure for neurofibromatosis, making early diagnosis and management crucial to improving patients’ quality of life.

Amidst the challenges posed by Neurofibromatosis, organizations like the Children’s Tumor Foundation (CTF) have emerged as beacons of hope. Committed to advancing research, supporting affected individuals, and raising awareness, CTF plays a pivotal role in fostering a brighter future for those living with Neurofibromatosis and their families.

As part of their tireless efforts, the Children’s Tumor Foundation is gearing up for their upcoming fundraiser, the “Shine a Light NF Walk – Florida.” This inspiring event aims to unite communities, spread awareness about Neurofibromatosis, and raise crucial funds to support groundbreaking research and essential programs that offer hope and assistance to those affected by this challenging condition.

NF Walk
Nov 12, 2023
9:00am – 11:30am

Lake Eola Park | Walt Disney Ampitheater
512 E. Washington St.
Orlando, FL
32801

Come join us for the 2023 Shine a Light NF Walk Florida!

The Shine a Light NF Walk is a fundraising event to benefit the Children’s Tumor Foundation and help end NF. Neurofibromatosis, or NF, affects millions of people worldwide, but few have heard of it and there currently is no cure. The Shine a Light NF Walk brings NF out of the shadows, raising awareness and funding research to help better the lives of those living with NF.

Step into a brighter future! Join us at Shine a Light NF Walk and make a difference together!