Parry-Romberg Syndrome is a rare medical condition that affects the skin and tissues on one side of the face. It’s like a mysterious visitor that causes gradual loss of fat and muscle, leading to facial changes. Imagine a slow, silent fading of one cheek, eyebrow, and eye area. This syndrome usually begins in childhood or adolescence and can vary in severity. While its exact cause remains unclear, it’s thought to involve the immune system attacking the body’s own tissues. Parry-Romberg Syndrome is more than just skin deep, impacting appearance and sometimes causing additional symptoms like headaches.

Now, let’s join hands and make a difference for those facing Parry-Romberg Syndrome. Introducing the upcoming “LUCY STRONG CHARITY RUN” – an event dedicated to raising awareness and funds to support individuals battling this rare condition. Just as Lucy’s strength has inspired us, this event aims to unite our community, spreading compassion and hope. Lace up your running shoes and mark your calendars, as we prepare to run towards a brighter future for those affected by Parry-Romberg Syndrome. Together, we can turn every step into a stride of support, making a lasting impact on lives and bringing us one step closer to understanding and overcoming this challenge.

LUCY STRONG CHARITY RUN
Lake Saint Louis, Missouri

Lake Saint Louis, Missouri
Sun 1st October 2023 – Sat 18th November 2023

3 races

ORGANISER’S DESCRIPTION

Lucy was diagnosed with a rare disease called Parry Romberg Syndrome in July of 2020. This disease causes degenerative damage to one side of the face. Since her diagnosis, she has undergone heavy medication treatments and four major surgeries to reconstruct her face and combat the further progression of the disease. Also, during this time, she has become a stronger and more faith filled individual, and she has inspired others to be strong through whatever hard times they may face. She has always wanted to do more than receive so this race is put on in efforts to race awareness and donate to the amazing organizations and foundations that supported her during her journey. Help us help someone else in need!

Join us, support Parry-Romberg research, and run for a stronger, brighter tomorrow. Sign up now!